Autism

Autism Acceptance Month

‘A couple of years ago, during the time I started this blog, every 2nd day of April is the World Autism Awareness Day (WAAD).   I am so excited to announce that our allies in the world are now shifting from autism awareness campaign to autism acceptance this year 2013. 

In line with this the Autism Acceptance Month Website was launched where Autism Acceptance is explained thoroughly it provides  fact sheets and resources about autism for autistic people, family members, educators, and the general public.  This site will also serve as a central location for posting and sharing information about autism acceptance-themed events occurring across the United State for the entire month (but everyone from anywhere in the world can join!)  I’m from the Philippines and I am part of the network.

You can also sign the  pledge that will look like this:

ip Earth Rullan
I pledge to only attend, speak at or otherwise participate in autism panels, conferences and events that meaningfully involve Autistic people. I choose not to give my business or my time to settings that fail to include Autistic voices in conversations about autism.
Metro Manila Philippines, 0

 

What is autism acceptance?

Autism acceptance means embracing and valuing autistic people as autistic people instead of being afraid of us, having low expectations, or trying to find a way to make us not autistic.

Why should I accept autistic people?
The Americans With Disabilities Act of says “disability is a natural part of the human experience.”  Autism is a natural part of the  human experience, and autistic people are members of our community, citizens, friends, family members, and fellow humans. Accepting autistic people is about honoring human diversity and making sure that everyone and is included, valued, and contributing in our society.  

OOTD: Goodby Metro Manila Happy Easter
Why should I care about autism acceptance?
1 in 88 people are autistic. You  probably know an autistic person. Autism acceptance means you want us around.

 

What does acceptance look like?
Autism acceptance looks different  to different people in different contexts. At its heart, autism acceptance is about accepting autistic people, instead of being afraid of us, having low
April is Autism Acceptance Month. Acceptance is an action. expectations, or trying to find a way to make us not autistic. That might look like

  •  inclusive education
  • helping your child or your friend learn to use their AAC device
  • fighting stigma and stereotypes about autism and autistic people
  • hiring an autistic person to work for you at the same wage as a comparable non-autistic person
  • snapping your fingers instead of clapping for applause so your autistic coworker isn’t hurt by the noise
  • or making sure autistic people are included and respected in your community and that your community is accessible to us.

Acceptance is not passive tolerance.
Acceptance is an action.

Doesn’t acceptance mean no therapies, no education, no intervention, just letting my kid stay where they are forever? Isn’t acceptance passive?
No! Acceptance is not passive. Acceptance is an action. Acceptance means doing everything you can so that your autistic child will grow up into the best autistic adult they can be, supporting your autistic friends in a world that is not designed for us, and working to make our world a better, more inclusive, safer place for autistic people of all.

Pistay Dayat 2013 Pangasinan
That’s my daugher, she has Autism, from afar she looks like a perfect sweet beautiful average girl, but she’s not she’s very special, she has Autism!
I know people are already aware now, now is the time for acceptance and sign the  pledge.  I just want to share   I still can’t get over that past experience I had at an event I attended just recently ( event of a a clothing brand from Japan who launched their new game app event)  where this girl blogger gave my daughter a piercing look like what the hell is she doing here and why is she like that.  Have I no self control I would have poked that girls eye with the barbecue stick I was holding.

Those who have seen my daughter with me know she is very sweet and not distracting.  It was the first time a blogger gave my daughter this kind of look.   I don’t know this blogger in person it was my first time to see her.  Whoever you are I think you know who you are because you look me in the eye and look at my daughter with a very disgusting and piecing look from head-to-foot.  And we were seated behind you and you just have to turn your head a couple of times to look at us.

Yes, there are still ignorant people like her.

Anyway, I hope you will all join me into making this cause real.

Stay gorgeous everyone!

PhotoGrid_1364959109281.jpg
You may want to read about Making The Rights Real For Persons with Autism .

 

 

Building & Strengthening Language Skills & Managing Behavior Problems Seminar

Autism affects 1 out of 150 children today but understanding the most effective techniques to help can be confusing to many. How do you build language skills in children with autism? How do you decrease behavior problems?  These are just some of the pressing questions parents and caregivers of children with autism face everyday.

Here is a two-day seminar that covers language and behavior problems. It is two day seminar organized by the Applied Behavior Consultants ABC Philippines.

Building & Strengthening Language Skills & Managing Behavior Problems Through Applied Behavior Analysis” is a two day seminar by by Kerry Madden-Solliday, B.A., Robyn Matsumoto, M.A. and Hui Ling Loh, M.A., BCBA

Day 1: Building & Strengthening Language Skills-Using the Verbal Behavior approach to develop language
What is the most effective approach to building language skills? A good Verbal Behavior program is designed to teach your child the reasons behind the give and take that is so important in connecting with the social world. It is connecting your child with this natural societal reinforcement that will motivate him to make beneficial relationship and learning choices beyond the teaching setting. Verbal Behavior has moved Applied Behavior Analysis beyond the rote, repetitive, table learning of its past and developed it into a natural, relationship building, holistic learning program.

Day 2: Managing Behavior Problems and Excesses What behavior intervention can help manage behavior problems?
Certain behavioral interventions have been shown to be effective in decreasing aggression in children with autism. Doctors, therapists, and other autism health care providers can train and coach parents and other caregivers to use techniques that can help prevent or limit aggressive behavior that is related to autism.

seminar builing and strenghtening language

WHEN: March 8 and 9, 2013
TIME: 8:00 am to 4:00 pm
WHERE: Conference Hall, Social Development Complex,
Ateneo de Manila University,
Loyola Heights, Q.C., Philippines

To register, please contact Anna Sales at 401.0010 or
0919.992.4388 or email admin@abccenterphilippines.com.ph
Deadline for Registration is March 1, 2013
Seminar fee (includes meals, handouts, and certificate of attendance)

Registration Fee:
Early Bird (until February 22nd)
1 Day: P1,620
2 Days: P3,060

Regular Fee:
1 Day: P1,800
2 Days: P3,400

I will be attending Day 1 as that is my major concern with my daughter right now. I hope to see some of you there!

Stay gorgeous everyone!

Make The Rights Real For Persons With Autism

Today is the World Autism Awareness Day (WAAD) as declared by the United Nations in December 2007.  The theme this year is “Make the Rights Real for Persons with Autism”.

Sadly, most families afflicted with autism in the country hardly know of their rights or even bother to claim such rights because of the red tape and bureaucracy happening in the country.  So far the only bill close to give some sort of benefit to family and persons afflicted with autism is the Special Educations Act a bill sponsored by Senator Ed Angara with a budget of Php600 million for 5 consecutive years.  I wonder where the money goes since the law took effect. The law is not autistic-specific but also includes other people with special needs and disabilities.

Meanwhile, there are 8 pending bills that are autism related and I hope will really benefit families and children afflicted with autism.
There are 3 bills filed by Senator Miriam Santiago: SBN-3133: Autism Spectrum Disorder Management Act, SBN-1644: Advisory Committee on Autism and Immune Deficiency Disorders in Infants and Toddlers, and SBN-1626: Autism Prevention, Early Detection, Diagnosis and Treatment Act.  While Senator Manny B. Villar filled two bills  SBN-1273: Autism Registry Act and SBN-1124: Interagency Initiative to Enhance Services for Individuals with Autism Spectrum Disorders.  And other bills filled individually  SBN-287: Philippine Commission on Autism Spectrum Disorders Act by Senator Antonio “Sonny” F. Trillanes; SBN-810: Autism Center by Senator Jinggoy P. Ejercito-Estrada; and lastly SBN-40: Comprehensive Autism Intervention Act of 2010 by both Senators Manuel “Lito” M., Lapid and Ralph G. Recto.

I have browsed some of the bills and feel that Senator Santiago, Senator Villar, Senator Trillanes, Senator Estrada , Senator Lapid and Senator Recto should read up each others bill and make one unified law for the benefit of and use of children and family afflicted with autism.  Please meet up with parents, schools, organizations that re dealing with autism and collate all the input from them and form a one unified and strong bill that will truly benefit the children and families afflicted wsith autism.  Having 8 separate bills is just confusing, our country hardly ever enforce a law strictly, just like the  law against violence on women and children where authorities shun domestic violence and inability to provide financial assistance as a common domestic problem they should not intervene. 

Personally persons and family afflicted with autism needs the following:

  1. An affordable if not free facility where a parent can take her child for diagnosis.
  2. An affordable center if not free facility where a parent can take her child for early intervention (for PT, OT, and one-on-one tutorials) .
  3. Scholarships for students who want to take psychology and special education, developmental psychology.
  4. Free training for parents and caregivers of children with autism.
  5. A safe facility/venue where we can take our child to socialize, play, and learn a livelihood with other children with autism.
More often than not, most parents are not able to take their child for proper diagnosis, intervention and training because they can’t afford the present rates to do so.  If an affordable if not free facility with the above benefits will exist, then it is very possible that every child with autism will be able to behave and perform in a productive and within acceptable norms that will benefit the child and the family as well.  I believe that the above suggestions I mentioned “empowers persons with autism to become to the best of their potentials, self-reliant, productive and socially accepted members of the community”-ASP.
I would also like that conferences like the 12 National Congress and 2nd Southeast Asian Conference On Autism be free of charge and be sponsored by the government, so that parents and caregivers of children with autism will be able to attend without worrying of paying the fee.  Conference fee is Php4,500 and will be held on April 28-29,2012 at the Crown Plaza in Ortigas.

poster 32012 (ASP) FINAL PRINT

Did you know that 1 percent of the world population is afflicted with autism and about 1 million families in the Philippines have to deal with autism everyday and only a few of them can afford to give proper care, education and medication?

Please help make the rights real for persons with autism.

Learning Challenges For A Child With Autism

The biggest challenge in teaching a child with autism is that they have a tendency to forget easily and so to be able for them to master something you have to teach the same things to them repeatedly until it becomes a habit.

When I enrolled my daughter for her special class she barely can sit for long minutes and barely can identify parts of her body. She also has difficulty identifying colors and shapes and her matching ability is more often hits or miss.

It really takes hard work and dedication to get her out of her shell. Even traveling with her can be a difficult because she would show her peculiar behaviours or throw a tantrum when in an unfamiliar place or in a place with lots of people.

I have to endure the rude stares and comments whenever she is on a hissy fit each time we are out to practice her behavior in public and her waiting time.

Aside from constant practice there are medicines, vitamins and foods that can help enhance her memory and behavior and Nutroplex is one of the vitamins recommended for her and also her daily forever maintenance medicine Tegretol to minimize her epileptic seizures.

After more than two years of attending her special school, my daughter is now a master in her class. Her strongest point now is matching objects and compared to other kids with her case it didn’t take her teacher long to make her master the parts of her body. In fact, if her progress continuous she will be included in a group of kids like her who are taught responsibilities around the house (applied daily living activities) like cooking, cleaning the house, buying and selling, counting money and change and the like.

Stay gorgeous everyone!

What Do You Know About Disability

I know most of you would not mind reading this post as this doesn’t concern or interest you in any way.   I was like you eight years ago.   My view about disability was confined with persons who shows very obvious signs impairment like being deaf, mute, blind, crippled, and with physical deformities or discriminations.

Autism was just a word to me, I did not know that people who are physically perfect can have a disability like my daughter.

However I dislike the term disability and I bet most of those who are differently able dislike the term too because they have special  means to be able not in a way we “average” people do.

This week is National Disability Prevention and Rehabilitation Week and I would like everyone to be aware and be considerate especially establishments and businesses who should honor the little comforts that the law provided for them like RA 9442 The Magna Carta for the Disabled Person.

Here are some of the activities related to the National Disability Prevention and Rehabilitation Week (like NDPRW page  in Facebook)

  • July 20 Web Accessibility Forum – Philvocs, Quezon City
  • July 21 Forum on Accessibility Law and Universal Design Concept – DOH Convention Hall, Manila
  • July 22 Paligsahan ng May “K” sa Kasaysayan at Kultura ng Pilipinas – National Historical Institute (NHI) Auditorium, Manila
  • July 22 Medical and Dental Mission (community-based) – Commonwealth Elementary School, Quezon City
  • July 23 Commemoration of Mabini’s Birthday - Tanauan City, Batangas and Polytecnic University of the Philippines (PUP), Sta. Mesa, Manila
  • July 17-23 Medical Mission Newborn Screening Campaign/Orientation – Philippine General Hospital, East Avenue Medical Center and Dr. Jose Fabella Memorial Hospital
  • July 17-23 Livelihood Exhibits of Products Made by Persons with Disabilities (PWDs) – SM North EDSA, Quezon City and Department of Public Works and Highways (DPWH) Grounds,
  • Intramuros, Manila
  • July 17-23 “Advocacy Access Radio Program – DZAS-702”

Meanwhile,  a free ear check-ups and hearing tests in selected barangays in the 6th District of Manila will be provided by i-Abante Batang MayKapansan, a public service of Cong. Benny Abante in cooperation with Sergia Esguerra Memorial Foundation, Inc. [SEMFI].  For inquiries, visit the schools at Nagtahan Road, Pandacan, Manila, or call 564-0156 or email at semfi@pldtdsl.net.

3rd World Autism Awareness Day Activities Philippines

Today marks the 3rd year the World Autism Day is celebrated.  Thanks to the United Nations General Assembly for adopting and  issuing a resolution on December 18, 2007 declaring April 2 as the World Autism Awareness Day (WAAD) that will bring the world’s attention to autism in perpetuity.

Autism is a pervasive disorder that affects tens of millions and does not discriminate sex, race, lifestyle or religion of an individual.  The WAAD  resolution encourages all Member States to take measures to raise awareness about autism throughout society and to encourage early diagnosis and early intervention. It further expresses deep concern at the prevalence and high rate of autism in children in all regions of the world and the consequent developmental challenges.

World Autism Awareness Day shines a bright light on autism as a growing global health crisis. WAAD  wishes to increase and develop world knowledge of autism and impart information regarding the importance of early diagnosis and early intervention. Additionally, WAAD celebrates the unique talents and skills of persons with autism and is a day when individuals with autism are warmly welcomed and embraced in community events around the globe.

Read, sign and print the World Autism Awareness Day Proclamation of Support



Below are the Philippines participation and list of events in relation to the 3rd World Autism Awareness Day activities nationwide as organized by the Autism Society of the Philippines (ASP):

  • Mar 25, 2010  Film Showing  Alyana: A Study of Autism in the Philippines held at the SM City North EDSA, The Block
  • March 30, 2010  Understanding Shoppers with Autism SM Molino Molino, Cavite
  • Apr 5, 2010 @ 8AM Understanding Shoppers with Autism SM Sta. Mesa ASP Nat’l Office
  • Apr 8, 2010 @ 3PM Art and Talent Show SM Rosario, Cavite Cavite
  • April 8, 2010 @ 8AM Seminar on Sensory Integration Central Phil University, Iloilo City
  • April 8, 2010 @ 7AM Fun Walk SM City Naga Naga Chapter
  • April 8, 2010 @ 7AM Motorcade SM City Iloilo Iloilo City Chapter
  • April 8, 2010 @ 3PM AutiSMusical SM City North EDSA, The Block
  • April 8, 2010 @ 1PM Variety Show SM City Valenzuela Valenzuela Chapter
  • Apr 11, 2010 @2PM Variety Show SM City Batangas Batangas City
  • Apr 12, 2010 @8AM Understanding Shoppers with Autism SM Mall of Asia
  • April 17, 2010 Sem. on Autism To be confirmed Cebu City Chapter
  • April 17, 2010 1PM Family Support Group ASP Nat’l Office ASP Nat’l Office
  • April 17, 2010 9AM Seminar on Home Management Program and Siblings’ Side of the Story: Their Journey in the World of Autism Central Phil University, Iloilo City Kid’s Nook Learning Center

Education Is Supposedly A Right Not A Privilege

This post is a day late, this was meant for the blog action day re: Education Is A Right spearheaded by the Kabataan Partylist.

I agree that everyone has the right to a quality and accessible education, it is a right given to as by the constitution, the basic of all human rights everyone is bestowed upon.   But sadly, with the present state education is now a privilege enjoyed by those who can afford.

For the coming school year, two of my closest mom and kid tandem at the special private school my daughter attends to will stop schooling because they could no longer afford the tuition fee.   Right now they are hunting for schools that can at least accommodate their special child.   I feel bad for the kids because they have improved so well after a couple of years of studying there, you can barely tell they have autism.

A new environment, especially at a non-focus special education at a public school could bring negative effects to the child as it could mean their regression because of the new environment or regression because of the non-focused type of teaching where they are blended with the other types of special children that needs a different teaching approach.

I don’t know what happened to this Free Special Education Act (HB6771) that was proposed by the Kabataan Partylist. It is a good bill and whoever wrote it understand what special children are and what kind of education and help they need from the government.

I hope the upcoming president of the Philippines, the one people will vote for and win the 2010 elections, will have a heart for the special people and will make HB6771 a priority.

Join Be A Fan Movement

Intellectual disability is the largest single life-long handicap existing in the Philippines today, affecting 3-7% of the population. More than 30,000 are born annually with the condition, and each passing year sees a rise in this figure. Each one of these special individuals needs the same care, attention and opportunity to be treated with respect and understanding as everyone else – because in the end, we are all human.

On the same month that Presidential Proclamation Nos. 1358 and 157 calls national attention on Down Syndrome and developmental disability, Special Olympics Philippines (SOP) calls on everyone to Be A Fan, a movement tapping into core attributes that everyone can appreciate – unity, acceptance, empowerment, dignity, courage, strength, pride, confidence and fun – for special individuals to receive the treatment they rightfully deserve, a rights based one.

“It is not disability, but personality – the capability to contribute to main society, not the condition – that makes an intellectually disabled person worthy to be treated with dignity and acceptance,” shared Anton Silos, a multi-awarded bowler from SOP, a non-profit humanitarian organization pioneered in the United States by Eunice Kennedy Shriver, created to help individuals with intellectual disability achieve their potentials through an organized year-round program of sports training, athletic competition, and recreation. The organization provides opportunities to individuals, like Anton, to have enriching experiences that show courage and joy, and develop their skills and gifts. Now present in over 200 countries, SOP aims and hopes to get everyone involved in this effort.

“Be a Fan of human dignity and acceptance,” said Dr. Therese Macapagal, incumbent president of the Special Olympics Philippines board. “Be a part of the movement by advocating the message of hope to institutions, actively campaigning to stop using the word ‘retard,’ joining thousands of families who uphold the rights of special people. These individuals can be helped to reach their maximum potential as human beings if we make the conscious choice to integrate them into society.”

Special Olympics Philippines



The Be A Fan movement aims to change negative perceptions or attitudes concerning intellectually disabled individuals through the sharing of resources and information both medical and sociological; through awareness-raising partnerships with media, government, academe and social institutions, it invites the public to get involved in ongoing efforts to improve the quality of life of all special people.

To join the Be A Fan movement, log on to http://www.sophilippines.org, or call 9266947 and find out how you can help and share your life with intellectually disabled individuals and be part of a global advocacy that pushes for human dignity and acceptance.

Please Help Bring Gomey Back Home

UPDATE: Gomey is home!  Hooray!  The more than 800,000 post helped. He was sent back home.  Details here.

One of my biggest pet peeve are people who are so full of themselves to think they are better than others and know more than anyone else.

I was doing my regular blog hopping when I chanced upon this story about Gomey, a 19 year old person with autism (PWA).  He is from Quebec, Montreal, Canada but he was forcibly taken away from his family and home and was brought to a French speaking psychiatric hospital because of a social worker who doesn’t understand a thing about autism and assessed Gomey has suicidal tendencies and can do harm to others if not himself which was far from the truth.

This social worker just started 4 months from her work.   She’s a social worker who took over the yearly ritual of a short assessment of the family to reach an agreement about some hours of respite care.  With the brief moment this social worker spoke with Gomey she decided she can break up a happy family.

Even psychiatrists and psychologists take more time to access suicidal risk.  People who know Gomey question themselves how someone can decide he’s a risk for his environment.  In all those 19 years he has never harmed someone, never attacked someone.

Gomey was recognised for his hand flapping.  Many autistic children display some sort of repetitive movement. Especially in times of stress or overstimulation.  Gomey learned to listen better to himself and as he grew up he learned to recognise difficult situations and often he’s able to deal with them, sometimes with and sometimes without help.

This incident, according to the post, happened February 1, 2010.   Gomey was taken away from his home with 2 police officers and several social worker, which I imagine can be very stressful and scary situation for Gomey and his family.

It’s already February 21, 2010 and Gomey’s family is hoping that he will be released and returned home soon.

Gomey’s family and people who care about PWA’s are spreading this news all over the net and any possible way they can because they want answers to why Gomey was taken away from them and bring him back home.

  • We need psychologists and psychiatrists who dare to speak out on behalf of this family.
  • Social workers who want to give a second opinion about the family,  and professionals who want to work directly with the family to support them and solve the matter.
  • Anyone who can contribute from his or her profession is welcome.
  • There are so many questions that need to be answered,
  • files to be requested.
  • Why was Gomey taken from his home?
  • Why did they come with so many people?
  • He is 19, so the law allows him to make a well informed choice. Why where his rights violated? Etc etc.

You can read more about this story by clicking the button below:

Help Gomey

Although more people are aware about the word Autism most don’t really understand what it is like unless you live with one.  I am glad I live here in the Philippines where most people are very tolerant and are family orientated.  Although they don’t understand why sometimes my child behaves inappropriately they understand she is a child.

But in other parts of the world Gomey is just one of the many autistic young people who are either thrown behind bars or put in institutions, just because people don’t understand the true nature of autism.

Gomey’s family are an example of many families who have to deal with professionals who make daily life a hell, because “they know better”.   Many parents fear interference of Childcare and other organisations because they take care of their children in a way which is not like society takes care of normal children.

“Autism is a neurological disorder which can’t be cured, but can improve when the environment is able to adjust to the needs of the person.   Because of a lack of differential diagnoses many children are considered autistic and won’t receive proper support and therapy, whereas they show autistiform behaviour which can be influenced with proper treatment of the underlying physical condition.”

Potty Training Experiences

One of the most difficult task of parents is teaching their child how and when to use the bathroom.  It is more difficult if you have to potty train a child with autism, as you have to make extra effort than an average child.

My daughter after so many years of training still has a lot of miss than hits especially when mommy is not around and granny is her only companion.  You see kids know who they can manipulate and who they should obey.

When I was potty training (actually I still have to remind her as often as I could since my daughter doesn’t mind what she is doing most of the time) I have to try so many techniques like taking her to the bathroom every 15 minute and introducing her the toilet,  when I see the “signs” that she is ready to go I take her to the toilet and sing songs until she goes.  We even play games in the toilet but not as extreme as a game of potty putter, but we do play some hand games.  I even tried leaving her in the toilet and would come back with her all wet and the toiletries all over the place!

Having a child at home is a lot of work, you always have to be alert all the time, but its also fun and rewarding when you see them learn and achieve a milestone.

How about you? How was your potty training experience with your child?